It was exactly one week ago today that I was put "at will" which means I eat when I wake up and want my bottle. It was also one week ago today that I weighed 6 pounds 15 ounces. Now 2 weeks ago today it was my first day out of the box and I weighed 6 pounds 4 ounces. That one week I grew 11 ounces! Now the week before that I weighed 5 pounds 9 ounces (2 weeks ago) So that following week I grew 9 ounces! Now here is the question of the day! How much did I gain this past week??? Ya well I gained one ounce :( Today I weighed in at 7 pounds yet again, I lost weight yet again :( Sunday I lost 20 grams, Monday gained 5 grams, and today lost 20 grams :( I have been off the feeding tube now for a week and that's why I can't gain weight. I try! I really do but I am still getting used to breathing and I fall asleep very easily :( But mommy and daddy have not given up on me!! :) Their love for me gives me hope and keeps me going and trying some more! Now I was VERY tired when they came in today to see me, as you can see up there I barely could get one eye open in our photo together. :( But It was feeding time and they decided to feed me them selves instead of the nurse! Now mind you I was VERY tired and had to be woken up constantly :( But I am trying!!! See!!
See I am kinda awake here :) Well the story is I need to gain back all the weight I lost and then some. It is the only thing holding me back now. Once I get over this hump again and gain all my weight back they will release me within 24 hours. So yes that means of course I am not being released today, and probably not tomorrow either (Baring a miracle!) Just give me time guys I promise I will figure it out!! Mommy and daddy did figure out though that if they keep rubbing my legs it wakes me up and then I remember to start eating again. After about 45 min I was FINALLY able to finish my bottle and my Iron medicine :) Here is a proud mommy below!
Ya again I was pretty tired and the camera hurt my eyes so I had to block my face (Sorry dad!!) So after that it was back to bed for me. Thank you mommy and daddy for getting my stubborn butt to eat my entire bottle! I hope the nurses try as hard with me as you guys did!! :) Daddy then laid me down and wrapped me up and I fell asleep instantly :)
You can see that I fell asleep with a little half smile :) You guys really do make me happy because you never give up on me :) I am sorry it's taking so long guys but I am trying, and I sure do love you all for waiting for me :) Just a little bit longer guys I promise!! I love you all family and friends and I will talk to you all tomorrow!! Good night!! :)
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Oh warrior princess Olivia I think everyone will agree we believe you are trying really really hard. Now don't get discouraged it will happen and very soon. Just like with many of your other accomplishments it will happen like magic! I am so proud of you for getting a whole bottle down with mommy and daddy tonight. Like you said... I hope the nurses take their lead and work hard to keep you awake and help you succeed. Well you have a good night with very sweet dreams. I love you precious little one. See you here tomorrow.
ReplyDeleteDarling Livi bear, you have done soooo much in such in such a short amount of time! You will do this too but at your own way at your own time. Each time I get inpaitient, I look back at the begining of your story and remind myself just how far you've come. The nurses, Mommy and Daddy, your family and even those you may NEVER meet, are all doing the only thing we can do, hoping, praying and sending all the love and good thoughts we can to help you on your way!
ReplyDeleteOne day at a time, baby, one time at a time! Love you, and Papa sends you big hugs and kisses too! :-)
Miss livi, you and I are going to have a little chat today. :) I'll be there soon!
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